The Tribal Collaboration Working Group

Purpose

The All of Us Research Program is committed to ensuring that the program reflects the diversity of the United States and includes individuals who have typically been underrepresented in biomedical research. The Tribal Collaboration Working Group, a working group of the All of Us Research Program Advisory Panel, will provide information for consideration regarding the inclusion of American Indian and Alaska Native (AI/AN) populations in the program.

Deliverables

The Tribal Collaboration Working Group will identify strategies for developing meaningful, culturally sensitive collaborations with AI/AN populations. It will offer input to the All of Us Research Program Advisory Panel, describing collaboration opportunities and potential challenges.

Read the report of the TCWG.

Roster

Co-chairs:

Lynn Malerba, D.N.P., M.P.A., Chief, Mohegan Tribe

Spero Manson, Ph.D., Distinguished Professor and Director, Centers for American Indian and Alaska Native Health, Colorado School of Public Health, University of Colorado Denver

Members:

Murray Brilliant, Ph.D., Director, Center for Human Genetics, Marshfield Clinic Research Institute

Denise Dillard, Ph.D., Director of Research, Southcentral Foundation

Abigail Echo-Hawk, M.A., Chief Research Officer, Seattle Indian Health Board; Director, Urban Indian Health Institute

Kevin English, Dr.P.H., Director, Albuquerque Area Southwest Tribal Epidemiology Center

Karen Maschke, Ph.D., Research Scholar and Editor, IRB: Ethics & Human Research, The Hastings Center

John Molina, M.D., J.D., L.H.D., Corporate Compliance Officer, Native Health; Program Lead, Special Populations Engagement, All of Us Research Program, University of Arizona Consortium

Kelly Moore, M.D., FAAP, Associate Professor, Centers for American Indian and Alaska Native Health, Colorado School of Public Health, University of Colorado Denver

Marcia O’Leary, RN, Missouri Breaks Industries Research, Inc.

Liana Onnen, Chairperson, Prairie Band Potawatomi Nation; Co-Chair, Tribal Advisory Committee, National Institutes of Health

Bobby Saunkeah, RN, MSHCE, CIP, Manager, Division of Research and Population Health, Chickasaw Nation Department of Health; Chair and Human Research Protections Administrator, Chickasaw Nation Institutional Review Board

Rachael Tracy, MPH, Research Director, Division of Planning, Evaluation, and Research, and Chair, National Institutional Review Board, Office of Public Health Support, Indian Health Service

Malia Villegas, Ed.M.

David Wilson, Ph.D., Director, Tribal Health Research Office, Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, National Institutes of Health

Tribal Collaboration Working Group of the All of Us Research Program Advisory Panel

Portrait of Murray Brilliant

Murray Brilliant, Ph.D.

Center for Human Genetics and the Personalized Medicine Research Project

Director

Portrait of Denise Dillard

Denise Dillard, Ph.D.

Southcentral Foundation

Research Director

Portrait of Abigail Echo-Hawk

Abigail Echo-Hawk, M.A.

Seattle Indian Health Board

Chief Research Officer

Placeholder image showing a graphical representation of three people above the All of Us Research Program logo

Kevin English, Dr.P.H.

Albuquerque Area Southwest Tribal Epidemiology Center

Director

Portrait of Spero Manson

Spero Manson, Ph.D.

Colorado School of Public Health

Distinguished Professor and Director, Centers for American Indian and Alaska Native Health

Placeholder image showing a graphical representation of three people above the All of Us Research Program logo

Karen Maschke, Ph.D.

The Hastings Center

Editor, Ethics & Human Research Journal

Portrait of John Molina

John Molina, M.D., J.D., L.H.D.

Native Health

Corporate Compliance Officer

Portrait of Kelly Moore

Kelly Moore, M.D., FAAP

University of Colorado Denver with the Centers for American Indian and Alaska Native Health (CAIANH)

Associate Professor, Colorado School of Public Health

Placeholder image showing a graphical representation of three people above the All of Us Research Program logo

Liana Onnen

Prairie Band Potawatomi Nation

Tribal Chairperson

Placeholder image showing a graphical representation of three people above the All of Us Research Program logo

Marcia O’Leary, RN

Missouri Breaks Industries Research, Inc.

Portrait of Bobby Saunkeah

Rev. Bobby Saunkeah, RN, M.S.H.C.E., CIP

Chickasaw Nation Institutional Board

IRB Chair and Human Research Subjects Protections Administrator

Placeholder image showing a graphical representation of three people above the All of Us Research Program logo

Rachael Tracy, M.P.H.

National Institutional Review Board

Indian Health Service Health Research Director and Chair

Portrait of Malia Villegas

Malia Villegas, Ed.M

Native Village of Afognak Tribal Council

Member

Portrait of David Wilson

David R. Wilson, Ph.D.

Tribal Health Research Office

Director

Last Reviewed: July 16, 2021